Opportunity to inform
We were very interested in your article regarding being diagnosed with Lou Gehrig's disease. My husband, John, was diagnosed two years ago. We are living daily with the implications of this awful disease.
I was so glad you mention ALSLA. This association has been such a help. I attend the support group at Loma Linda. This has been so helpful and encouraging. I find it very educational because suddenly you have many needs that you don't know where to go to get help. I highly recommend this group.
I was also able to attend the National Advocacy Day in Washington, D.C. We called on Senators and Representatives presenting the needs of all ALS patients. It was a very empowering experience.
You have such a wonderful opportunity to help inform the public of the plight of those with this disease.
John is completely bedridden at this point in the disease. We feel very blessed because his speech has basically not been affected.
Sincerely,
Mary Chandler